Finn still has his cold and a low grade fever (nothing over 100 in the last two days, though!). I am amazed at the amount of stuff that comes out of his nose. I'll sucker it and two minutes later, it will need it again. Poor guy. I woke him up for his appointment today and he had snot all over his hand and face (he was sucking his thumb). Yuck!
We had the appointment for Finn's head shape (craniofacial, I believe) today. I'm glad they were able to squeeze us in, but I'm a little (or a lot) frustrated. The doctor basically said that having a mis-shapen head does not affect his brain or his development and it is completely up to the parents if they want to take corrective measures or not. I want some guidance! What do you recommend? Is his case considered bad or will he out grow it eventually? What kind of results can we expect? Will the corrective measure slow his development at all? If we go ahead with corrective measures, Finn would have to wear a cranial cap for 2-3 months for 23 hours a day. Our PT had said the optimal age for the cap was 4-6 months, which Finn is obviously outside of that range, but the doctor today said 7 months is what they prefer. Finn is 7 1/2 adjusted, so that shouldn't be a problem. The doctor said it would not bother Finn to have it on. Jim is traveling, so we'll talk about it when he gets home later tonight. Just one more thing to consider and pray about and hope NOT to make the wrong decision about!
2 comments:
Stacy and Jim - You asked some really good questions on the blog - did you ask those of the specialist that you saw today? Did you ask them of the pediatrician you saw earlier? We had to make a decision about whether to have surgery done on John to correct bone - it would have been cosmetic and did not affect his development - we opted not to do the surgery - if you want to know more or discuss the issue - give us a call this weekend - Love you all! Memere
If he just has to wear a cap to fix it i am assuming the cap is going to make his skull plates fall into shape not inhibit the growth of them, as kids skull plates are not fused until they are older so the brain has room to grown.. i saw loads of kids with the caps when gavin was going to speech and most of them didn't even notice they were wearing them. Also i would imagine they become so used to wearing it like a hat, that you won't have to beg him when is 3 to wear a hat like i do :)
Hang in there and go with your gut and heart! and you can always ask for a 2nd opinion!
Post a Comment