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Nearly half a million babies (1 in 10) are born premature in the US each year which is higher than that of most other developed nations. This is the journeys of our first born son, Finnegan, who was born 14 weeks early and weighed only 1 pound 15 ounces at birth. Of our daugher, Korrigan, who was born a healthy 7 pounds, 7 ounces at 37 weeks. And of our second son, MacKeegan, who was also born at 37 weeks at a whopping 8 pounds, 13 ounces. Our continued adventures reminds us daily how good God is.

Thursday, April 23

Development Results

We had Mac's follow up results meeting today with his Early Intervention team (case worker/teacher and Physical Therapist). The short of it: he tested at or near 100% for all areas except motor, where he tested around a 6 month old.

The long of it is that they tested him using the Bayley Scales of Infant Development, which is a fairly common method. I answered some of the parts, the PT conducted the fine and gross motor and the teacher did the rest. The results were "child's primary disability category: developmental delay." Basically, as we thought, he has delays with his gross motor skills. The "goods" news is that the PT can't see a "reason" for it, so there isn't any underlying issues that would prevent him from learning these things like crawling or walking. We just need to get him to move his body in an appropriate way.

To qualify for services, you have to receive a score of 77 and Mac scored 73 (over a -1.5 standard deviation). They combine fine and gross motor, which is kind of odd to me, because he scored higher in fine motor and much lower in gross.

Cognition (play skills): 95%
Communication (taking in information and expressing wants/needs): 91%
Social Emotional (building relationships): 100%
Adaptive (using all skills to adapt to changes in environment): 94%

Essentially, he is very bright and well adjusted, which was so nice to hear, but just can't move his body appropriately.

To help with his gross (and some fine) motor skills, we set up time with the Physical Therapist to come and work with us every two weeks. She feels it will just be an issue of getting him to move his body in a way that helps him manipulate his positions (easier said than done). The plan is to do visits every two weeks until Mac is moving around (in whatever capacity his is crawl, scooting, crawling, creeping, etc) and then reassessing his need and maybe changing to once per month after that.

Our goals over the next year (when he will be 21 months!) are:
1. Roll from back to stomach, and stomach to back
2. Move 5 feet across the floor creeping
3. Pull to stand
4. Cruise around furniture
5. Take 5 steps without support
6. Walk upstairs with support

We hope to achieve 1-3 in 6 months and 4-6 by 12 months. It just seems so unattainable right now, but I know with hard work, we can do it! The first thing is to get his siblings to stop getting things for him. That will be the hardest as Mac makes it VERY well known when he wants them to get him something.

Overall, I was somewhat emotional when going through the results today. I, of course, feel like it is something I did or didn't do and if I were "better" he would be doing all these things. But at the end of the day, "normally developing" babies don't need their parents to do ANYTHING to do these things AND I'm not a physical therapist (my head knows this, my heart just hurts). But Mac is healthy and happy and unless something comes to light as we are working with him, there is no reason to believe he can't do these things. A few prayers would be appreciated, nonetheless.

The PT made a point to tell me that she was NOT generous with his gross motor scores, which means if he didn't fully do a skill, she didn't give him credit. She was afraid that he would be on the bump and not qualify for help, even though he would benefit from it. SO...this is worse case scenario. She also said that she knows he is capable of doing some things she tested him on and she can tell he just chooses not to (like twisting his body to play facing his side). Little Stinker!

We have his 9 month well-child appt tomorrow, so I'll be bringing the Individual Family Service Plan (IFSP) along so we can figure out if private PT would also benefit him (like going to Gillette, like Finn did/does).

Hopefully in one year, all six items will be checked off and this will just be a bump in his journey. PT has a feeling once he starts moving, all the rest will come along pretty "easily." Fingers crossed that this is the case!

And because I can't have a post without a pic, here is Mac sleeping yesterday:

Yes, he is still swaddled and yes, I plan to talk to his doctor about it tomorrow!

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